About the Sarphati Cohort

Read all about the Sarphati Cohort here! If you have any questions, please do not hesitate to contact us on 020 555 5495 or send an e-mail to cohort@sarphati.amsterdam.

The Sarphati Cohort

Within the Sarphati Cohort research is conducted into the growth and development of Amsterdam children. This concerns children receiving services from Youth Health Care  (YHC) at the Public Health Service of Amsterdam (GGD Amsterdam) and the Amsterdam Health Foundation (SAG) Parent and Child Teams.

During the consultations with the Parent and Child Teams, YHC collects data about the health and development of children up to 18 years of age. We use this information to provide care. In order to conduct research, we request explicit parental consent to use some data anonymously for the Sarphati Cohort. The aim of this research is to gain insight into the causes of certain non-communicable diseases including diabetes, obesity and cardiovascular diseases.

Will you help too? You can do this quickly and easily via the Sarphati App or by downloading the app in Google Play (Android) or the App Store (Apple).

 

What data do we use for the Sarphati Cohort?

We use data collected by Youth Health Care (YHC). This data can only be used anonymously for the Sarphati Cohort study after you, as parent, have given your consent. During the consultation, YHC collects data about the health and development of children. This information is registered and collected in order to offer children the best possible care. Not all data collected in the context of healthcare is used for the Sarphati Cohort. We only use a limited set of data regarding movement, sleeping, diet, motor development and growth.

We also ask some additional questions for the Sarphati Cohort. We’ll send 1 or 2 short questionnaires annually until your child is 4 years. Each questionnaire will be different and is age specific. The questionnaires will always include one or more of the following themes: nutrition, exercise, sleeping, growth, parenting and background characteristics. It is not compulsory to complete the questionnaire, but if you do so, you’ll be making an important contribution to our research.

Privacy

Please be assured that we will treat your data will all due care. Your child’s data will be given a code number for the  purpose of the study and will then be used anonymously for scientific research. This means that the researchers can never see whom the data belongs to. This also means that Youth Health Care has no access to the information that you enter on the research questionnaires.

The data controllers at the Sarphati Cohort only see the code number in combination with the research data. Before the research data is made accessible for researchers, the code number is removed. The data is then checked for traceability. The researchers only see the research data, but do not know which child it belongs to.

The data is used by Sarphati Amsterdam researchers. This is an extremely diverse group of people including epidemiologists, sociologists, nutritionists, educationalists, sleep scientists, movement scientists and physician-scientists. All researchers are connected to Public Health Services (GGD) and one of the knowledge institutes that together form Sarphati Amsterdam. Read more about Sarphati Amsterdam here.

When you register we will ask you to enter your e-mail address. This will only be used for administrative purposes: to send information or questionnaires for the study or to invite you for additional research. We will sometimes also approach you by post via the address that is registered with Youth Health Care.

Who is implementing the Sarphati Cohort?

The Sarphati Cohort is being implemented by the Public Health Service of Amsterdam (GGD Amsterdam). Within the Public Health Service the departments Epidemiology, Health Promotion & Healthcare Innovation (EGZ), Youth Health Care and the Amsterdam Regional Laboratory are closely involved in implementing the study. If you would like to know more about our partners, read more here on this website or view the short video!

 

 

Would you like to get involved?

Do you have parental authority as parent or guardian? Then you can login with the Sarphati App via this website and give consent to take part in the Sarphati Cohort. By downloading the Sarphati App via the App store (Apple) or Google Play (Android) you always have information about the Sarphati Cohort at hand. You can also use the app to withdraw your consent at any time, should you wish to do so. The app makes it even easier to find information about the study and to keep a check on the length of your participation.